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15 March 2008 @ 02:55 pm
Surgery Update  
Hi guys, I'm home from the hospital. I'm so bummed. I went in at 5am yesterday, got admitted, and waited three hours for the surgeon. They walked me into surgery, put me under, and I woke up feeling really nauseous, but overall pretty good! Waited another two hours for the surgeon to come speak with me, only to find out the very disappointing news that she had to back out of the surgery once she got in there. Turns out that my nasal passages were too severely swollen. She tried Afrin and a Cocaine nasal spray ( ) to try to shrink them, but couldn't get up past them to do her work. So she was only able to do a partial surgery.  She did remove some polyps on the right side and I have packing on my right side, but couldn't get to either ethmoid passage to do the planned work on them. Instead, I'm going back on antibiotics and prednisone for two weeks to try to shrink down the passages and then will have to go through this whole process all over again. She also did a biopsy on my nasal tissue to try to find out why it's so swollen. She said she has never had to back out of a surgery like this before. I go back on Thursday for a follow up, to get the biopsy results, and to come up with the next plan of action. I have packing on one side and a big bandage on my nose still as it is bleeding very heavily. She said her even just trying to touch or work with the tissue would cause it to bleed profusely.  I'm not really in any pain or anything, just feeling some discomfort from the packing on the one side and with it bleeding like it is. So I'll find out more info hopefully on Thurs. But I'm so depressed that I went through surgery and wasn't able to get the sinus problem corrected. So the saga will continue I guess.

For those that are curious and are actually still reading, LOL, here's my history.  I've had sinus problems for about four years now, but the first two years looking back were not that bad at all. I'd get maybe 3-4 infections a year and they would be nasty and drug resistant, but would eventually go on a long term antibiotic and would finally kill it and then feel fine for a few months again. The past two years have been pretty awful though and when I was officially diagnosed with chronic sinusitis. I've had a sinus infection for 21 of the past 24 months and even months of antibiotics won't kill it completely. I go off and it comes back within 2-3 weeks. I've been to an allergist, ENT, homeopathic, etc. and have already been through one sinus surgery on different passages.  I use a nasal irrigation machine daily and a humidifier at night and hot steam baths/showers every morning. I've been on flonaise (sp?) and zyrtec the past two years and have tried several other nasal and allergy prescriptions as well. I've been on antibiotic and two oral steroids for the past two months in preparation for the surgey and was feeling better actually as the steroid helped shrink the nasal passges. But my prescriptions ran out 10 days ago and the doctor didn't think I'd need to refill them that close to the surgery date. Well, she was wrong and the infection came back even worse than before, hence the cancellation on the ethmoid passages yesterday as the surgeon couldn't even reach them.  All the C-Scans showed severe infection in the ethmoid passages which is why we elected to finally do surgery on them. But then yesterday happened, so we're back to trying to shrink the passages and attack the infection again with yet more antibiotics and steroids.

That's the quick history. But anyway, when she got an inside look yesterday, she said the sinus passages themselves actually didn't look that bad. Typically swollen nasal passages are a secondary result from the sinus passages, but she think it might be the other way around for me. That swollen nasal passages might be my primary problem, causing congestion and blocking the mucus and bacteria in the sinuses and causing the infections. So now she wants to try focusing again on the nasal passages before going back in for the second surgery on the ethmoid nasal passages. She took a biopsy and we should hopefully have those results by my follow up appt on Thurs. If the results give us a clue of what's causing the severe swelling and how to treat it. She wants me to go back to an Allergist for some specific testing and to try the allergy shots as I haven't tried that yet. (We always thought the problem was more in the sinus passage) and she is testing for a couple rare diseases that could also possibly be the cause. I don't remember their names, but she said they are treatable. So if we find a different route, we'll go that way and see what happens. Best case scenario, we get the swelling down for good and I can avoid a third surgery . But the more likely scenario is that we'll get the passages down and then go back in with yet another surgery as it's still very possible the ethmoid passages are part of the overall problem. So I'm kind of back to the unknown right now and hope to get more answers on Thursday. I'm SICK of being drugged up all the time and being in chronic pain. So I'm really hopeful we'll finally find the cause, whether it be tied to the nose itself or to the sinuses still or both. I just want it fixed so I can finally feel normal again. Two years is a really long time to feel crappy.

I swear I'm losing more and more brain cells everyday too, LOL! But seriously, I do struggle with memory and basic things that have always been very easy for me. I have a photographic memory and never had to study in school. I just read my notes and I'd remember everything exactly. Same at work, we have over 10,000 pages of guidelines and I can tell you not only what it says, but what page it's on, where on the page it is and what the page looks like. I was breezing through college level testing exams in 4th grade, was able to skip two grades in high school, got four BA's in my four years at college, and got promoted as the youngest manager ever at my company all by the time I was 20 years old. But now I struggle to remember basic things and can't recall things nearly as well. I feel like I've been dumbed down and it's so frustrating. All this long term medicine is having terrible affects on me.  Hopefully we'll get at least some direction at Thursdays' appt. 

So anyway, I'm home now and not feeling too bad.  My throat has been really sore since I woke up from my sinus surgery attempt yesterday, which is from the tube they put down my throat after I was put under. It feels even worse today, so I looked in the mirror just now, and I have big red sores on the back of my throat and roof of my mouth. No wonder it hurts! Is that normal does anyone know?? That little floppy dangling thing (sorry can't remember what it's called, LOL!) is all swollen and red too. The sores, for lack of a better word, aren't infected or anything like that, more like red patches and scabs. It looks like they must have scraped it up quite a bit putting it in or taking it out. Anyone else ever had that from being intubated during surgery?   I didn't have that the last time.  My nose is swollen today as well, but it doesn't really hurt at all, and I can't even feel the packing up there. But I can definitely feel the throat! It feels even more exaggerated from having to breathe through my mouth and fighting severe dryness as well. I only got a few hours of sleep because I kept waking up so often coughing from such a dry throat. I guzzled down four bottles of water during the night and still couldn't get rid of that feeling.  Fun times!  
 
 
Current Mood: exhausted
 
 
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noperfectlife: prison break-lincoln reality kicks faith[info]noperfectlife on March 15th, 2008 08:14 pm (UTC)
Can I say MAJOR HUGS? *sends lots of love your way* I know what you mean in all cases, like you really want to get rid of it, but you feel like all the medicine is having its toll on you as well. I have medecine for my stomach, but after two years, it feels like the medecine is making it worse and worse.

I hope you find out what's wrong with your sinuses. My sinuses get infected frequently and I know how much it sucks :(

*LOTS AND LOTS OF HUGS*
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loveconquers14[info]loveconquers14 on March 19th, 2008 03:31 am (UTC)
Thank you!!! BIG HUGS back at you right now.
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Milmiss: DS PromNight[info]milmiss on March 15th, 2008 08:36 pm (UTC)
*hugs you*

I've been waiting to hear how it went, and I clearly wasn't expecting that. That sucks! And here I was today telling a classmate that a friend of mine had surgery yesterday. He was like "Something serious?" And I replied "Not really, it's a sinus surgery, and it's supposed to be way easier than the one she had before. So I guess it went well." *headdesk*

*goes looking around on her computer to try and find something to cheer you up*
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loveconquers14[info]loveconquers14 on March 19th, 2008 03:31 am (UTC)
I know, this was about the last thing I was expecting too! :( Hopefully I'll find out more on Thurs, namely if I have to go through this again or not. That will also tell me how much vacation time I'll have this year. UGH!
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Jennyanydots: love[info]tielan on March 15th, 2008 09:17 pm (UTC)
I'm sorry that they couldn't get your sinus issues fixed this time, hon. *hugs*

On the plus side, they still think there's something that can be done about your sinuses, they're not at the end of their options.

Hope the biopsy results are good news for you and the next surgery.
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loveconquers14[info]loveconquers14 on March 19th, 2008 03:32 am (UTC)
Thanks Tielan!!! And thanks for the encouragement, that means a lot.
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Of the dreamer persuasion[info]agriope23 on March 16th, 2008 10:16 am (UTC)
I just wanted to say how sorry I am. Almost everyone in my family has a chronic disease, and while there is what illness does to your body, it's always worse how it affects your life and sense of self.

Two years is a really long time and it getting unexpectedly lengthened really sucks!

Unfortunately all is have is compassion and maybe fic, if you want any? Any prompt you want.

Oh, and a hug. *hugs you*

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loveconquers14[info]loveconquers14 on March 19th, 2008 03:40 am (UTC)
You are SOOO sweet, thank you so much! Big hugs back at you! If you have time, I would love to read a simple little fic that focuses on the perfect kiss. I love those kind. :)
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Of the dreamer persuasion[info]agriope23 on March 20th, 2008 12:40 pm (UTC)
You are most welcome. And I have a little something for you. Not sure if it's what you had in mind, but here it is. And if you feel like fics about kissing, sga_beya's having a kisses challenge. Lots of great stories!

Feel better! :)


Return to Me

Every morning, Teyla’s greeting is a smile. And John knows how she’s slept by the quality of that smile. A radiant one, lips slightly parted, affording just a hint of pearly white teeth, tells him she found peace in the late hours. A strained twitch, her lips moving mechanically to greet him indicates a sleepless night or one full of dark nightmares.

He’s known many women in his life, for different periods of time. He was married and knows what it’s like to have someone live beside you. Their ups and downs, their joys and sorrow, you watch it all unfold and you try to stick by them and help them through. He’d failed in this, he’d let Nancy down. He never wants to do the same with Teyla.

“Hey. Rough night, huh?”

He’s never asked who crowds her nightmares or keeps her lying still in bed, staring at the ceiling, barely breathing and not moving. She may or may not know that her stillness wakes him, as much as any heated nightmare does, and that he keeps vigil alongside her, his only loss Teyla’s momentary absence.

It’s a deal tacitly struck from the very beginning: part of her mind she keeps to herself, part of her heart is with the Athosians who didn’t return to Atlantis, with Kanaan and her son. She welcomes John into her bed and her life, but some recesses of her mind are off limits.

Her strained smile makes its appearance and he does the same thing he always does, what she never asks for and leaves it to him to offer.

He leans over and kisses her, brushes his lips against hers over and over again. She stills a little while he brushes the hairs off her forehead and caresses the delicate skin. She reacts little by little, she clings to him and makes her way back, leaving her ghosts behind.

She kisses him back passionately, deepens the kiss and this is the gift she gives him, the ability to be her solid ground, her touchstone. Every time John brings her back, he feels the kind of man he’s always wanted to be, the kind of man she deserves.


Edited at 2008-03-20 02:57 pm (UTC)
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loveconquers14[info]loveconquers14 on March 20th, 2008 10:54 pm (UTC)
Oh my gosh, this is PERFECT!!!!!! And so what I was in the mood for. What an awesome thing to come home too!!! Thank you SOOOO much! I just love this!!! Such a longing mood with a really great kiss. :) Thank you!!!!!
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Of the dreamer persuasion[info]agriope23 on March 21st, 2008 12:37 am (UTC)
Mission accomplished. I'm so glad you liked it. :)
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mayra2[info]mayra2 on March 16th, 2008 06:11 pm (UTC)
I'm so sorry to read that the surgery didn't go as planned. I didn't know all that you have had to go through in these last 2 years!. It sounds like there are at least still options to figure out what may be going on and how it could be fixed. I hope they can give you some good news on Thursday.

HUGE HUGS!!!

Mayra
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loveconquers14[info]loveconquers14 on March 19th, 2008 03:41 am (UTC)
Thanks Mayra!!!! But yeah, I'm glad at least there is still options to explore and that we can hopefully still get this all fixed eventually!!!
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2bluaeryn[info]2bluaeryn on March 17th, 2008 01:45 am (UTC)
Hey Sweetie, I'm so sorry to hear that your surgery didn't go well. I know how much you were looking forward to have some kind of *fix* for this situation...sooner rather than later.

I can also relate to you and the thought process problem. I was no way as talented as you in the memory department, but I remember when I could study, watch TV and listen to the radio and still make staight A's. Now mind you I AM much older than you, but I could do that in my day - LOL!!

As for the ET tube, the only thing I can think is that maybe because of the noted swelling the intubation(putting the tube in) and or extubation(taking it out) may have been more traumatic than normal. That may account for the problem esp. since you said it wasn't the case before.

Big hugs to you girlie and I got your back in the prayer department too.

Cyn
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loveconquers14[info]loveconquers14 on March 19th, 2008 03:43 am (UTC)
Thanks Cyn!!! My throat is feeling better now, so that's good. Now I'm more fighting the oh so fun side effects from all the medication. But it's all helping, so that's a relief at least. Hopefully I'll get some good news on Thurs. Thanks for being there!!!
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jeyla4ever[info]jeyla4ever on March 17th, 2008 01:53 am (UTC)
you call that doctor tomorrow ASAP!!!!

I don't like the sound of those sores...and the last think you need is more infections.

You need to drink something to build up your inmune system again...all those antibiotics are killing you!

I'll have to go see Mom cause she's the herbal medecine woman.

I'm so worried about you. I can't believe you are going through all of this. I know how you feel cause you know I"m going through the same thing with my ear.

Hubby got something similar to what you got, but he never had any problems like what you are describing with his throat. Only dry for the first 24 hours or so, trust me, he's a whiner when he's like that, so I would have noticed if anything was wrong with him like you. And there wasn't. So, you need to call them tomorrow.

Have you considered getting a second opinion? I know that by now, you are just so fed up, but I can't beleive they made you go through that surgery and now you are practically back to square one.

Two years is ridiculous. No one should go through that. I"ve been going through it for so long because I never go to see the doctor when he tells me to...*slaps self*
But when I do go, he's on it!

If this doesn't work out for you and you see that there is still some hesitation there, I would go see someone else.

*sighs*

I wish I was there for you hon. At least to help you feel better, make you some soup and warm the tub for you to keep warm and snuggled.

Is mommy there with you? will you still be out for the week from work?

Email me...

((((((HUGS))))))))

Camy
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loveconquers14[info]loveconquers14 on March 19th, 2008 03:44 am (UTC)
Thanks Camy!!!! I'm going to wait and see what they say on Thurs and then will maybe get a second opinion. It's definitely frustrating, but as long as they don't run out of options, I know I just have to hang in there and it will get better eventually. Thanks for being there for me!!!
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maffieg[info]maffieg on March 17th, 2008 02:08 am (UTC)
sorry to hear you still not 100% but I hope and pray for the best.

keep your chin up.
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(Anonymous) on March 17th, 2008 09:32 pm (UTC)
DUDE!
Whats up with cocaine nasal spray man!!! LOL

Well here's hoping everything gets better from here on in for ya!!! Seems like you been gone forever!

MrsB
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loveconquers14[info]loveconquers14 on March 19th, 2008 03:48 am (UTC)
Re: DUDE!
LOL, I know, my eyes bugged out at that one! First steroids and then cocaine nasal spray?! I'm afraid to know what's next! LOL! But thanks for the note. I'm trying to slowly get caught up with everything!!! I miss you guys lots!!!
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loveconquers14[info]loveconquers14 on March 19th, 2008 03:44 am (UTC)
Thanks Maff!!! Big hugs!!!!
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yappichick: Jt1[info]yappichick on March 17th, 2008 09:36 pm (UTC)
I am sooo sorry to hear about this! (((BIG HUGS))) Keep your spirits up and, Lord willing, this will all be over soon! You're in my prayers!
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loveconquers14[info]loveconquers14 on March 19th, 2008 03:45 am (UTC)
Thanks YC!!! That means a lot! Big hugs!
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padme18: coffe cup[info]padme18 on March 17th, 2008 11:44 pm (UTC)
I hope you heal good and everything turns out ok.
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loveconquers14[info]loveconquers14 on March 19th, 2008 03:45 am (UTC)
Thanks Padme!!! I'm feeling a little better now and am anxious to see what they say on Thurs. Hopefully it will be good news!
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elflinn[info]elflinn on March 18th, 2008 02:48 am (UTC)
Oh Steph! (((((MASSIVE HUGGLES)))!! I hope that this all able to be taken of! You are so in prayers hon! Just remember that while you are on all the 'drugs', think happy JT thoughts! Seriously! We miss you! But, you take care of yourself and get better!




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loveconquers14[info]loveconquers14 on March 19th, 2008 03:46 am (UTC)
Thanks Elf!!! Yeah, the drugs are making me kind of miserable, but they're working as I can finally breathe again now. LOL! So hopefully I'll get good news on Thurs and a way to finally fix this. Thanks for the note!!! BIG HUGS!
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